Pierre Robin Sequence/Syndrome

During Noah's newborn evaluation, the nurse noticed that his jaw was pushed far back and that he had a cleft palate. They sent him off to the NICU to be evaluated and observed. Dad followed him along.

Next time I saw Noah I held him for a few minutes as tears flowed down. He had tubes and wires hanging everywhere. I cried at the sight of him but I had hope that everything would be okay. How could it not? I expected nothing but good news in the next hours and expected to take him home in two days. Well that didn't happen. Soon we were told his air way obstruction had caused his lung to collapse, Drs were successful in inflating it again. By 3pm the Dr told us Noah would be transferred over to the Children's Hospital of Philadelphia for specialized care. They told us the name of the condition but explained nothing further nor what it meant. He had Pierre Robin Sequence/Syndrome. A condition in which the jaw was underdeveloped. In the womb it didn't have a chance to pop forward during development which resulted in a cleft palate. A condition that made the two major functions of life: breathing and eating difficult.  He was in the NICU for the rest of the day.

Family came to visit and meet Noah. No one knew exactly what to expect or what was happening but when they saw him, they cried as did I. By 9pm Noah was transported and Daddy went with him. I was left behind. Still recovering...with a broken heart...and alone. Still clueless to what lied ahead.